Supporting your loved one during his or her transplant journey

You’ve been there through the transplant process. Here are a few things you may want to consider when caring for your friend or family member during his or her recovery.

Organization

Try to help your friend or family member make a checklist of everything that might be needed each day. You could help your loved one create a schedule for medicine, diet, and exercise with input from their transplant team.

Tracking progress

Your loved one may find it useful if you help keep track of test results and measure his or her progress together.

Scheduling

Try using a calendar to help keep track of your loved one’s appointments. You may also consider writing down test results from each appointment, setting dates for goals, and recognizing important milestones

Communication

Why not ask your loved one how he or she is feeling? You could always talk with the transplant team if you feel it is appropriate. Your input might help the medical team understand what your loved one is experiencing and provide better care.

Getting around

Offer to provide your loved one with transportation to and from appointments.

Try to relax

Make sure you take time out for yourself.

Positivity

Providing encouragement may help your loved one stay strong or make needed changes. Find ways to get him or her back into action through small steps.

Preventing infection

Help prevent infections in the household:

  • Wash your hands with soap and water
  • Use paper towels instead of sharing cloth ones
  • Be cautious and hygienic around pets
  • Stay away from your loved one when you’re sick

These steps will go a long way toward helping your loved one prevent infections.

Understanding

Your friend or family member may have mood swings. These reactions may be due to the transplant experience, or they may be a side effect of his or her medicines. His or her emotional control may improve over time.

Caregiver
http://www.caregiver.com
3350 Griffin Road, Ft. Lauderdale,
FL 33312
(800) 829-2734

Caregiver Media Group is a leading provider of information, support, and guidance for family and professional caregivers.

National Alliance for Caregiving
www.caregiving.org/about
4720 Montgomery Lane, 2nd Floor,
Bethesda, MD 20814

The National Alliance for Caregiving increases public awareness of family caregiving issues, works to strengthen state and local caregiving coalitions, and represents the US caregiving community internationally.

National Kidney Foundation
www.kidney.org/patients/
pfc/caregiver.cfm

30 East 33rd St, New York, NY 10016
(800) 622-9010

The National Kidney Foundation provides information about the important role of the caregiver to the patient, as well as to the entire family.

The Gift of Life Family House
www.giftoflife
familyhouse.org/
resources/caregiverlifeline

401 Callowhill St, Philadelphia,
PA 19123
(855)-6-FAMILY

The Gift of Life Family House provides caregivers with the answers to many questions about finances, physical and emotional health issues, and the stages of the transplant process.

National Association of Hospital Hospitality Houses, Inc. (NAHHH)
www.nahhh.org
PO Box 1439, Gresham, OR 97030
(800) 542-9730

NAHHH is a nationwide professional association of nonprofit organizations that provides lodging and support services to patients, families, and their loved ones who are receiving medical treatment far from their home communities.