Tools

  • Download Doctor's Visit Checklist
    Here are a few items that you should bring to your doctor appointments. Download PDF
  • Download Questions You May Have Before Transplant
    Here is a discussion guide that offers topics you may want to talk about with your transplant team. Download PDF
  • Download Keep a Record of Your Tests
    This form helps you to keep track of the tests you need, as well as any questions or concerns to address with your transplant team. Download PDF
  • Download Appointment Tracker
    This form helps you to keep track of your medical appointments, as well as any questions or concerns you might want to discuss with your transplant team. Download PDF
  • Download Understanding Life After Organ Transplant
    Frequently asked questions about life after organ transplant. Download PDF
  • Download Transplant Team
    Download this tool for more information about the possible roles and responsibilities of the members of your transplant team. Download PDF
  • Download Medicine Tracker
    Dates and other details about medicines you may be taking can be recorded and discussed with your transplant team. Download PDF
  • Download Hospital Packing Checklist
    Here are a few things to remember to bring with you to the hospital. Download PDF
  • Download Things to Know Before Your Transplant
    Here are some of the things you should know before transplant. Download PDF
  • Download Questions You May Have After Transplant
    This is a discussion guide that offers topics you may want to talk about with your transplant team. Download PDF

Resources

  • Download Living Organ Donation
    Provides information on becoming an organ donor, including a list of helpful resources. Download PDF
  • Download 20 Tips That May Help You Follow a Healthy Diet
    It’s important to consult your transplant team before changing your diet. Here are some tips you can discuss with them. Download PDF
  • Download Your Guide to Liver Transplants
    If you are waiting for a liver transplant or wondering if it is a possibility for you, this brochure may help answer some of your questions. Download PDF
  • Download Your Guide to Living Kidney Donation
    This brochure answers many common questions about living kidney donations for people considering becoming a living donor. Download PDF
  • Download Understanding Cytomegalovirus (CMV)
    Learn about cytomegalovirus (CMV) and ways to prevent infection. Download PDF
  • Download Your Guide to Heart Transplants
    If you are waiting for a heart transplant or wondering if it is a possibility for you, this brochure may help answer some of your questions. Download PDF
  • Download Wellness Guide: Your Life After Transplant
    This Wellness Guide is for patients who are planning to receive an organ transplant or who have started life as a transplant recipient. Download PDF
  • Download Your Guide to Kidney Transplants
    If you are waiting for a kidney transplant or wondering if it is a possibility for you, this brochure may help answer some of your questions. Download PDF

The following is a partial list of organizations you can turn to for support, information, and education. The information provided by Genentech or these organizations is meant for informational purposes only and is not meant to replace medical advice from your transplant team.

General

American Society of Transplantation (AST)

www.a-s-t.org
15000 Commerce Parkway, Suite C, Mt. Laurel,
NJ 08054
(856) 439-9986

AST is an organization of more than 3,000 transplant professionals dedicated to research, education, advocacy, and patient care in transplantation.

American Transplant Association (ATA)

www.americantransplant.org
47 West Polk Street, Suite 100-133, Chicago,
IL 60605
(800) 494-4527

ATA is a non-profit organization dedicated to providing education and services to those affected by organ transplant.

Children’s Organ Transplant Association (COTA)

www.cota.org
2501 West COTA Drive, Bloomington,
IN 47403
(800) 366-2682

COTA helps children and young adults who need transplants by providing fundraising help and family support.

Gift of Life

6405 Metcalf Ave, Suite 109, Overland Park,
KS 66202
(913) 851-1947

Gift of Life builds awareness of the critical need for organ and tissue donation and provides help to transplant patients, their families, and living donors.

Help Hope Live (formerly National Transplant Assistance Fund)

www.helphopelive.org
150 North Radnor Chester Road, Suite F-120, Radnor,
PA 19087
(800) 642-8399

Help Hope Live helps people raise money for transplants.

Medscape homepage

www.medscape.com/transplantation

Medscape provides information about transplants.

National Foundation for Transplants

www.transplants.org
5350 Poplar Avenue, Suite 430, Memphis,
TN 38119
(800) 489-3863

The National Foundation for Transplants is a fundraising organization benefiting thousands of transplant candidates and recipients.

Transplant Living

www.transplantliving.org

Visit the site for a state-by-state listing of support groups.

TransWeb

www.transweb.org

TransWeb features real people’s experiences, the top 10 myths about donation, frequently asked questions with answers, as well as videos of U.S. and World Transplant Games.

United Network for Organ Sharing (UNOS)

www.unos.org
PO Box 2484, Richmond, VA 23218
(888) 894-6361

UNOS is the private, nonprofit organization that manages the nation’s organ transplant system under contract with the federal government.

For heart transplant recipients

American Heart Association

www.heart.org
7272 Greenville Avenue, Dallas,
TX 75231
(800) AHA-USA-1 or (800) 242-8721

The American Heart Association provides information on how to build healthier lives, free of heart and blood vessel diseases and stroke.

For kidney transplant recipients

American Association of Kidney Patients (AAKP)

www.aakp.org
3505 East Frontage Road, Suite 315,
Tampa, FL 33607
(800) 749-2257

The American Association of Kidney Patients is a national nonprofit organization founded by kidney patients.

American Kidney Fund (AKF)

www.kidneyfund.org
6110 Executive Boulevard, Suite 1010, Rockville,
MD 20852
(800) 638-8299

The American Kidney Fund fights kidney disease through direct financial support to patients in need, health education, and prevention efforts.

Kidney Options

www.kidneyoptions.com
(866) KIDNEY1 or (866) 543-6391

Kidney Options is an educational resource for people who have or know people who have kidney disease. Kidney Options is also a resource for health care professionals who guide patients and their families to the best treatment option for them.

National Forum of ESRD (End-stage Renal Disease) Networks

www.esrdnetworks.org
PO Box 70835, Richmond, VA 23255
(804) 418-7990

The Forum of ESRD Networks advocates for the organizations that check the quality of chronic kidney disease, dialysis, and kidney transplant care in the United States.

National Kidney Foundation

www.kidney.org
30 East 33rd Street, New York,
NY 10016
(800) 622-9010

The National Kidney Foundation, a major voluntary nonprofit health organization, is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease, and increasing the availability of all organs for transplantation.

For liver transplant recipients

American Liver Foundation

www.liverfoundation.org
39 Broadway, Suite 2700, New York,
NY 10003
(212) 668-1000

The mission of the American Liver Foundation is to facilitate, advocate, and promote education, support, and research for the prevention, treatment, and cure of liver disease.

Hepatitis Foundation International

www.hepfi.org
504 Blick Drive, Silver Spring,
MD 20904
(800) 891-0707

The goal of the Hepatitis Foundation International is to educate people and give them the latest, most reliable information so they can make well-informed decisions for their own or their loved ones’ health.

Additional resources about the donor process

If you are in need of a transplant, your transplant organ may come from a living donor such as a family member, friend, or even a donor you don’t know. If a living donor is not available for you, your transplant organ may come from someone who has just passed away and requested that his or her organs be donated. If this is the case, you will be placed on a national waiting list by an organization called the United Network for Organ Sharing, or UNOS.

Each time an organ becomes available, a transplant coordinator from an organ procurement organization, or OPO, enters medical information about the donor into the UNOS computer system. UNOS then works to make sure the organ is given to the best possible match, taking these things into consideration:

  • Level of illness
  • Medical necessity
  • Similarities between donor and patient
  • Ability of the candidate to have the transplant at that time

If more than one person is identified as a match for an available organ, the person who has been on the waiting list the longest will be considered first.

Donated organs are also provided according to geographic location, so you would most likely be considered for an organ donation closest to your transplant center. However, patients may be considered for organs that become available in other areas. This is known as "multiple listing." Each transplant center has its own rules about whom it accepts as a candidate, and it may not accept patients who are listed at other centers.

If you wish to be listed at more than one center, you should let each center know. Also, when considering a transplant center, think about:

  • Whether it would be easy for you to get there
  • The average wait time of that center
  • Its transplant success rates
  • The availability of a support system
  • The cost of living in that area before and after the transplant

The transplant team is always working to make sure that you continue to be a candidate for a transplant. While you are on the waiting list, you will have blood tests every month so that early match testing can be done with organs that become available. You will also have routine clinic visits to monitor your health and the health of the organ that needs to be replaced. These steps ensure that you will be as prepared as possible when a transplant organ is found for you.

Organ donor resources

Association of Organ Procurement Organizations (AOPO)

www.aopo.org
8500 Leesburg Pike, Suite 300, Vienna,
VA 22182
(703) 556-4242

AOPO is a nonprofit organization dedicated to the special concerns of OPOs, providing education, information, and collaboration with other healthcare organizations and federal agencies.

Gift of Life Donor Program

www.donors1.org/patient
401 North 3rd Street, Philadelphia,
PA 19123
800-DONORS-1

The Gift of Life Donor Program coordinates transplants for those waiting and supports the generous donors and their families who have chosen to donate.

LifeGift

www.lifegift.org/about-us
2510 Westridge, Houston,
Texas 77054
(800) 633-6562

LifeGift strives to save and enhance lives by increasing organ and tissue donation.

The American Organ Transplant Association

www.aotaonline.org
21175 Tomball Parkway #194, Houston,
Texas 77070
(713) 344-2402

The American Organ Transplant Association helps patients lead happy, productive lives by providing information about getting transplants.

Transplant Recipients International Organization (TRIO), Inc.

www.trioweb.org
2100 M Street, NW, #170-353, Washington,
DC 20037-1233
(800) 874-6386

TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families, and the families of organ and tissue donors.